• Issue

    Health Expectations: Volume 28, Issue 3

    June 2025
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ISSUE INFORMATION

Free Access

Issue Information

  • First Published: 23 April 2025

ORIGINAL ARTICLE

Open Access

The Coproduced Youth Priorities Project: Australian Youth Priorities for Mental Health and Substance Use Prevention Research

Kate Ross,  Jessica Houston,  Emma Barrett,  Felicity Duong,  Tanya Dearle,  Smrithi Ravindra,  Cheryl Ou,  Kirsty Rowlinson,  Marlee Bower,  Louise Birrell,  Katrina Prior,  Lucinda Grummitt,  Chloe Conroy,  Anna Grager,  Maree Teesson,  Catherine Chapman, 
  • First Published: 23 April 2025
Open Access

‘The Second Arrow’: A Collaborative Autoethnographic Exploration of What Can Be Learned From One Long COVID Journey

Sarahjane Belton,  Kate Sheridan, 
  • First Published: 23 April 2025
Open Access

‘I Have Never Been in That Kind of All-Consuming Pain … I Did Not Know What Else to Do’: The Journey to Hospital Admission With Low Back Pain From the Perspectives of Patients

Joseph F. Orlando,  Matthew Beard,  Anne L. J. Burke,  Michelle Guerin,  Saravana Kumar, 
  • First Published: 23 April 2025

REVIEW ARTICLE

Open Access

Experiences and Perceptions of Self-Harm in Rural-Dwelling Adults: A Rapid Review of Qualitative Evidence

Katie Saunders,  William Nicholls,  Nadia Corp,  Tom Kingstone,  Faraz Mughal,  Carolyn A. Chew-Graham,  Jane Southam,  Tamsin Fisher, 
  • First Published: 25 April 2025

ORIGINAL ARTICLE

Open Access

Patient and Clinician Perspectives on Communication in Primary Care Centres in Qatar—A Focus Group Study

Nancy Dixon,  Liz Cox,  Bayan Fraihat,  Tareq Khalil Alzeq,  Mohammed Abdalla,  Nawal Khattabi, 
  • First Published: 25 April 2025
Open Access

Multimodal Analysis of Stories Told by Mental Health Influencers on TikTok

Alex Christiansen,  Shioma-Lei Craythorne,  Paul Crawford,  Michael Larkin,  Aalok Gohil,  Spencer Strutt,  Ruth Page, 
  • First Published: 24 April 2025
Open Access

Synergies, Discrepancies, and Action Priorities: A Statewide Engagement Study to Strengthen Clinical Research in Cerebral Palsy

Melissa M. Murphy,  Gavin T. Colquitt,  Paige S. Ryals,  Katie Shin,  William C. Kjeldsen,  Allison McIntyre,  Sydni V. W. Whitten,  Christopher M. Modlesky,  Nathalie L. Maitre, 
  • First Published: 24 April 2025
Open Access

Stakeholder Involvement in the Development of a New Proactive Clinical Review of Patients Prescribed Opioid Medicines Long-Term for Persistent Pain in Primary Care

Sarah A. Harrisson,  Clare Jinks,  Nicola Cornwall,  Charlotte Woodcock,  Lisa Dikomitis,  Toby Helliwell,  Adele Higginbottom,  Janet Lefroy,  Roger Knaggs,  Tamar Pincus,  Miriam Santar,  Claire Sillitto,  Matthew Webb,  Simon White,  Christian D. Mallen,  Julie Ashworth, 
  • First Published: 25 April 2025
Open Access

Digital Long Covid Communities—Shaping Diagnoses, Treatment Strategies and Modes of Expertise

Petter Almqvist-Ingersoll, 
  • First Published: 28 April 2025
Open Access

Long Covid Symptom Clusters, Correlates and Predictors in a Highly Vaccinated Australian Population in 2023

Essa Tawfiq,  Rosalie Chen,  Damian Alexander Honeyman,  Rebecca Dawson,  Mohana Kunasekaran,  Adriana Notaras,  Deepti Gurdasani,  Helen Skouteris,  Darshini Ayton,  Chandini Raina MacIntyre, 
  • First Published: 08 May 2025
Open Access

‘They Were Talking to Each Other but Not to Me’: Examining the Drivers of Patients' Poor Experiences During the Transition From the Hospital to Skilled Nursing Facility

James D. Harrison,  Margaret C. Fang,  Rebecca L. Sudore,  Andrew D. Auerbach,  Tasce Bongiovanni,  Audrey Lyndon, 
  • First Published: 28 April 2025
Open Access

Consumers' Contribution to Health Research: Australian Research Organisations' Perspectives

Mingming Zhou,  Julia Dray,  Anne Parkinson,  Alice Richardson,  Lucy Clynes,  Jane Desborough, 
  • First Published: 28 April 2025
Open Access

Adapting Experience-Based Co-Design to Disability Research: Co-Producing the CycLink Co-Design Study

John Joseph Carey,  Alicia Spittle,  Christine Imms,  Nora Shields,  Margaret Wallen,  Finn O'Keefe,  Miriam Joy Yates,  Holly Skilbeck,  Rachel Toovey, 
  • First Published: 28 April 2025
Open Access

Understanding Barriers to Engagement With a Prostate Cancer Research and Genetic Risk Service Among UK Men of Black African or Black Caribbean Ancestry

Hall Rose,  Emma Hainsworth,  Jeff Thompson,  Saran Green,  McGrowder Eva,  James Denzil,  Eeles Rosalind,  Elizabeth Bancroft, 
  • First Published: 29 April 2025
Open Access

Perceptions and Experiences of a Multimodal Rehabilitation Program for People With Post-Acute COVID-19: A Qualitative Study

Beatriz Carpallo-Porcar,  Sandra Calvo,  Sara Pérez-Palomares,  Laura Blázquez-Pérez,  Natalia Brandín-de la Cruz,  Carolina Jiménez-Sánchez, 
  • First Published: 29 April 2025
Open Access

Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires

Merel Engelaar,  Femke van Schelven,  Nanne Bos,  Marion L'Hote,  Clémentine Rialland,  Norbert Couespel,  Carina Dantas,  Caitriona Higgins,  Tapani Kalmi,  Inke Minnée-van Braak,  Laura Pinnavaia,  Giovanni Apolone,  Cinzia Brunelli,  Augusto Caraceni,  Montse Ferrer,  Mogens Groenvold,  Stein Kaasa,  Gennaro Ciliberto,  Claudio Lombardo,  Ricardo Pietrobon,  Gabriella Pravettoni,  Aude Sirven,  Hugo Vachon,  Galina Velikova,  Jany Rademakers, 
  • First Published: 29 April 2025
Open Access

Co-Producing Resources to Help Improve Access to Primary Care for Young People With Attention Deficit Hyperactivity Disorder

Rebecca Gudka,  Anita Salimi,  Rachel Gaywood,  Dale Hendrick,  Kieran Becker,  Oliver Medzinskii,  Faraz Mughal,  G. J. Melendez-Torres,  Jane Smith,  Tamsin Newlove-Delgado,  Anna Price, 
  • First Published: 29 April 2025
Open Access

Perceptions and Experiences of Consumer Representatives on Patient Safety Investigation Teams: A Qualitative Analysis

Peter D. Hibbert,  Yinghua Yu,  Charlotte J. Molloy,  Matthew Ames,  Duncan Brown,  Jenny Berrill,  Zoe Fernance,  Jennifer Morris,  Liat Watson, 
  • First Published: 30 April 2025
Open Access

Personalisation at the Core of Success: Process Evaluation of the LISTEN Randomised Controlled Trial Evaluating a Personalised Self-Management Support Intervention for People Living With Long Covid

Fiona Leggat,  Anna Torrens-Burton,  Bernadette Sewell,  Nick Sevdalis,  Monica Busse,  Anne Domeney,  Judith Parsons,  Maria Ines de Sousa de Abreu,  Fiona Jones, 
  • First Published: 05 May 2025
Open Access

From Doubt to Diagnosis: Canadian Patient Perspectives on a Limb-Girdle Muscular Dystrophy Diagnosis

Homira Osman,  Zainab Adamji,  Gerald Pfeffer,  Jodi Warman-Chardon,  Pryamvada Varma,  Jenna Keindel,  Stacey Lintern, 
  • First Published: 05 May 2025
Open Access

Illness Expectations and Asthma Symptoms: A 6-Month Longitudinal Study

Eleonora Volpato,  Valentina Poletti,  Paolo Banfi,  Andrea Bonanomi,  Francesco Pagnini, 
  • First Published: 05 May 2025
Open Access

Addressing the Health Needs of Underserved Populations Through Public Contribution: Prioritisation and Development of a Peer Support Intervention for Sexual and Gender Minority Forced Migrants

Tommy Carlsson,  Rogers Kissiti,  Maria Jirwe,  Elisabet Mattsson,  Louise von Essen,  Maria Gottvall, 
  • First Published: 06 May 2025
Open Access

Families' Perceptions of Powered Mobility for Participation in Children With Spinal Muscular Atrophy Type 1: A Photovoice Study

María Coello-Villalón,  Cristina I. Díaz-López,  Purificación López-Muñoz,  Helena Romay-Barrero,  Soraya Pacheco-da-Costa,  María Plasencia-Robledo,  Egmar Longo,  Rocío Palomo-Carrión, 
  • First Published: 07 May 2025
Open Access

Implementation, Processes and Outcomes of Advance Care Planning: A Culturally and Contextually Appropriate Programme Theory Developed in Chinese Long-Term Care Facilities

Yuxin Zhou,  Ariel Wang,  Clare Ellis-Smith,  Debbie Braybrook,  Haixia Feng,  Richard Harding, 
  • First Published: 08 May 2025

REVIEW ARTICLE

Open Access

Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom

Jessica Marshall,  Evie Papavasiliou,  Louise Allan,  Katherine Bradbury,  Chris Fox,  Matthew Hawkes,  Anne Irvine,  Esme Moniz-Cook,  Aimee Pick,  Marie Polley,  Amy Rathbone,  Joanne Reeve,  Dame Louise Robinson,  George Rook,  Euan Sadler,  Emma Wolverson,  Sarah Walker,  Jane Cross,  the SPLENDID Collaboration , 
  • First Published: 10 May 2025

ORIGINAL ARTICLE

Open Access

Reporting on a Partnership to Co-Design a Digital Health Intervention With Young People Who Have Experienced Technology-Assisted Sexual Abuse

Sandra Bucci,  Alice Newton,  Pauline Whelan,  Kim Cartwright,  Prathiba Chitsabsean,  Simon Foster,  Victoria Green,  Amanda Larkin,  Rhiannon-Faye McDonald,  Ethel Quayle,  Matthias Schwannauer,  Victoria Selby,  Filippo Varese, 
  • First Published: 10 May 2025
Open Access

Listening to Women's Voices: A Patient and Public Involvement Exercise Exploring Vulval Reconstructive Surgery for UK Women With Female Genital Mutilation (FGM)

Juliet Albert,  Janet Fyle,  Njomeza Kartallozi,  Christie Coho,  Naana Otoo-Oyortey,  Hekate Papadaki,  Catrin Evans,  Dalia Saidan,  Sohier Elneil,  Natasha Anderson-Foster,  Jasmine Abdulcadir,  Huda Mohamed,  Aurora Almadori, 
  • First Published: 12 May 2025

REVIEW ARTICLE

Open Access

Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for People Living With Dementia (PLWD) in the United Kingdom

Evie Papavasiliou,  Jessica Marshall,  Louise Allan,  Katherine Bradbury,  Chris Fox,  Matthew Hawkes,  Anne Irvine,  Esme Moniz-Cook,  Aimee Pick,  Marie Polley,  Amy Rathbone,  Joanne Reeve,  Dame Louise Robinson,  George Rook,  Euan Sadler,  Emma Wolverson,  Sarah Walker,  Jane Cross,  SPLENDID Collaboration , 
  • First Published: 12 May 2025

ORIGINAL ARTICLE

Open Access

Living With Long COVID: Everyday Experiences, Health Information Barriers and Patients' Quality of Life

Esther Ortega-Martin,  Javier Alvarez-Galvez, 
  • First Published: 14 May 2025
Open Access

Children and Young People's Priorities for Mental Health Research in Northern Ireland

Siobhan O'Neill,  Carol Rhonda Burns,  Edel Ennis,  Raymond Bond,  Maurice Mulvenna,  Elaine Murray,  Thomas Wilson, 
  • First Published: 19 May 2025
Open Access

Time for a New Norm: Experiences of ‘Being Informed’ and ‘Having Choice’ for Prenatal Screening for Chromosomal Conditions: A Qualitative Study

Niamh Ireland-Blake,  Fiona Cram,  Kevin Dew,  Sondra Bacharach,  Peter Stone,  Jeanne Snelling,  Christina Buchanan,  Sara Filoche, 
  • First Published: 19 May 2025

REVIEW ARTICLE

Open Access

Perceptions of Hospital Care Quality According to People Living With Multiple Long-Term Conditions: A Scoping Review

Freya Thompson,  Sue Bellass,  Thomas Scharf,  Miles D. Witham,  Rachel Cooper, 
  • First Published: 19 May 2025

ORIGINAL ARTICLE

Open Access

Development and Psychometric Testing of EPAT-16: A Short and Valid Measure for Patient-Centeredness From the Patient's Perspective

Eva Christalle,  Levente Kriston,  Stefan Zeh,  Hannah Führes,  Alica Schellhorn,  Pola Hahlweg,  Jördis Maria Zill,  Martin Härter,  Isabelle Scholl, 
  • First Published: 20 May 2025

REVIEW ARTICLE

Open Access

‘Before and After’. The Journey of Patients With Low Back Pain Consulting in Elective Spine Surgery Clinics. A Qualitative Study Protocol

Matthew Fernandez,  Deb Lees,  Katie de Luca,  Dawn Dane,  Peter Stilwell,  Leanda McKenna,  Brigitte Tampin,  Caroline Bulsara,  Tamar Pincus,  Michelle Kendell, 
  • First Published: 20 May 2025

ORIGINAL ARTICLE

Open Access

Improving Diversity in Recruitment: Lessons Learned During the REACH Pregnancy Circles Pilot Trial

Octavia Wiseman,  Sidera Tahir,  Christine McCourt,  Anita Mehay,  Helliner Robinson,  Kade Mondeh,  Lorna Sweeney,  Meg Wiggins,  Mary Sawtell,  Angela Harden,  the REACH Research Team , 
  • First Published: 21 May 2025
Open Access

‘All I Do Is Sit in a Chair Until the Pain Fades’—Experiences of Living With Gout

Helene Sedelius,  Renée Flacking,  Mats Dehlin,  Anna Svärd,  Malin Tistad, 
  • First Published: 21 May 2025
Open Access

Processes Underpinning Successful Co-Design: Lessons From a Digital Health Project

Catherine Burns,  Monique F. Kilkenny,  Tara Purvis,  Seana L. Gall,  Christine Farmer,  Seamus Barker,  Brenda Booth,  Janet E. Bray,  Dominique A. Cadilhac,  Jan Cameron,  Lachlan L. Dalli,  Stephanie Ho,  Eleanor Horton,  Timothy Kleinig,  Lisa Murphy,  Mark R. Nelson,  Muideen T. Olaiya,  Amanda G. Thrift,  Rosanne Freak-Poli, 
  • First Published: 22 May 2025
Open Access

Co-Designing a Digital Stroke Prevention Platform: Leveraging Lived Experience and Expert Advice

Tara Purvis,  Catherine Burns,  Seamus Barker,  Monique F. Kilkenny,  Seana L. Gall,  Christine Farmer,  Vaishnavi Sudhakar,  Dominique A. Cadilhac,  Brenda Booth,  Janet E. Bray,  Jan Cameron,  Lachlan L. Dalli,  Stephanie Ho,  Eleanor Horton,  Timothy Kleinig,  Lisa Murphy,  Mark R. Nelson,  Muideen T. Olaiya,  Amanda G. Thrift,  Rosanne Freak-Poli, 
  • First Published: 22 May 2025

REVIEW ARTICLE

Open Access

Understanding Inclusion and Participation of People From Black African Diaspora Communities in Health and Care Research: A Realist Review

Eleanor Hoverd,  Sophie Staniszewska,  Jeremy Dale,  Dawn Edge,  Rachel Spencer,  Violet Effiom,  Dionne Gravesande,  Lorna Hollowood,  Samantha Johnson,  Tony Kelly,  Roy McFarlane,  Esther Mukuka,  Shane Ward, 
  • First Published: 22 May 2025

ORIGINAL ARTICLE

Open Access

Anticipating the Future in an Uncertain Present: How Individuals Living With Medically Unexplained Cognitive Complaints Value Biomarker-Based Prognostics

Anne-Fleur van der Meer,  Marjan Knippenberg,  Denise Visser,  Marianne Boenink, 
  • First Published: 24 May 2025
Open Access

Barriers to Care for Adults With Sickle Cell Disease: A Qualitative Descriptive Study

Chanell Grismore,  Lisa R. Roberts,  Zephon D. Lister,  Akshat Jain,  Julio Silvestre,  Ja'Nece Dickerson,  Susanne B. Montgomery, 
  • First Published: 24 May 2025